We want to hear from those with a life-limiting illness, their carers and families about what day services they think would improve their wellbeing.
Working through research consultancy Evolving Communities, we are carrying out a research project into our current day services and want to find out if we’re providing the right information and activities to support patients, families and carers.
The information gathered from the research will be used to develop and shape our future provision of day services.
We want to hear from people who are living with a life-limiting illness, carers/family members/close friends and people working closely with people who have a life-limiting illness.
There is a common misunderstanding that hospices are places where people go to die, are only for those with advanced cancer, or those that are elderly. In reality, hospices are much more than this:
“Palliative hospice care is not just for people in the last days of life, it is there to provide support for anyone with a life-limiting illness and their families, to help them live well until they die.”
Dr Sarah Russell, Head of Research at Hospice UK
Dr Sara Nelson, Head of Research & Insight at Evolving Communities, said: “A life-limiting illness is one that is incurable and that will get progressively worse over time; ultimately shortening a person’s life. However, with appropriate support, a person with a life-limiting illness may continue to live well for a long time. We want to find out if and how people use the Dorothy House Day Services and what could be done to improve them. We are appealing for a wide variety of voices including anyone over 18 living with a life-limiting illness, whether they access Dorothy House Day Services or not, along with carers, family members, close friends and people who work closely with someone with a life-limiting illness.”
Ruth Gretton, Director of Patient and Family Services at Dorothy House Hospice Care said: “We are delighted to be working with Evolving Communities on their research into day patient services at Dorothy House. We look forward to hearing constructive feedback from people in the local community affected by a life-limiting illness, including those we’ve yet to engage with as well as our existing patients so we can review and improve our services for the future. Our sincere thanks to all who take part in the survey before 5 January.”
An online survey is available for people to share their views.
Visit https://www.smartsurvey.co.uk/s/DHdayservices/ to take part.
The survey closes on 5 January 2020.