Dorothy House has supported me in every part of my life, from Mary the Nurse Specialist who visits once a week to Louise the physiotherapist who comes around to do walking with me. It's been brilliant. I had a ten day stay at the Inpatient Unit which was amazing- brought me up to top notch when I didn't realise I was actually down below zero.
Without the suggestion from Mary to attend respite to sort my medication and the huge help from Winsley, I would have been unable to complete one of my ambitions, to fly with friends to Cornwall by helicopter, there and back. I felt like a movie star. Happy memories for us all. My husband has also benefitted from the golden touch of Dorothy House; helping him understand my life that includes living and dying.
The Hospice has improved my day to day life- immeasurably! They're there if I need them and I can call any time. Before Dorothy House I was very lost and confused with things- from my medication to life in general. It was a blessing when they got involved with my medications as I had got into such a terrible mess. My Nurse Specialist was here for a long Friday evening sorting me out; she should have left at 5pm but was here until 7 pm! How she kept her bonnet on I'll never know. I tested her to the max! She never complains. They all make it look effortless and they become very special.
I'd recommend them to everyone. The support I have been given has made this a good journey. They are teaching me how to live but they are also teaching me how to die. It's both sides.
I can talk about dying to Dorothy House and I have adjusted to the idea in my head - which is so important and I'm getting used to what might happen. I really wish people didn't fear the idea of a hospice because they bring nothing but help to live your life to its fullest. Dorothy House is very important to me - and I encourage other people to take the same opportunity.
The more people who understand their work - helping people to live - the less afraid they'll be.
After I have gone, I would like to be remembered for laughter and I am grateful to everyone at Dorothy House who has helped me continue to laugh and create precious memories.