Your personal records

Like a lot of the NHS, we use an electronic patient record system called SystmOne. If you decide to take up any offer of our support, for administrative and professional practice purposes we will need to record and store a certain amount of personal information about you on this database. This will include your name, address, date of birth, GP and consultations with professionals. We’re a multi-disciplinary team so all staff involved in your care need to have access to your records in order to provide co-ordinated and appropriate care and support.

If you are receiving support from us and if any of your healthcare professionals i.e.  district nurses, GP practice and other health and social care staff also use SystmOne as their clinical database system, we encourage full sharing of clinical information. This has many benefits which are outlined in the following downloadable leaflet Consent to share records (PDF, 330kb), which also explains how information can be safely shared between the different organisations.


Your permission

Any personal identifiable information Dorothy House records about you will only be shared with your permission. It will only be shared with relevant hospital teams or other health and social care staff involved in your care. We will always try to talk to you first if we need to share sensitive information.

If you would prefer us never to share any information with other health and social care professionals, please let us know and we will record and abide by this wish. It is only in exceptional circumstances, that we are required by the law to share your information, without your permission, but this is a rare scenario e.g. if there is a need to protect an individual from serious harm, or a crime has been committed.

The Data Protection Act (1998) gives you the right to see your records, for more information see the Information Commissioner’s Office website


Monitoring our standard of care

The Care Quality Commission, which has a legal duty to monitor the standard of the care we provide, asks that we give them the contact details of patients and their carer/close family member referred to us so that they are able, prior, or following an inspection visit, to contact you to discuss the care you or your relative have received. If you do not wish us to provide them with this please can you inform us by calling our Clinical Coordination Centre on 0345 0130 555 (Monday-Friday, 8-6pm; Saturday-Sunday 9am-5pm) or dhhc.dorothyhouse-referrals@nhs.net


NHS Data Management

In order to receive our proportion of NHS funding we are required to provide a limited amount of personal data to the Clinical Commissioning Groups (CCG) with whom we have a contract via the Commissioning Support Unit. Anonymised data is also used for audit and service improvement projects as we continually strive to improve and develop our services. If you have any questions relating to this please do contact us for more information – clinical.informatics@dorothyhouse-hospice.org.uk or call: 01225 722 988