Motor Neurone Disease (MND) + Progressive Supranuclear Palsy (PSP) Study Day

This study day is brought to you by the Dorothy House Education Team and will include a mixture of in-house and external professionals.

Dawn Beckett is an experienced Occupational Therapist and has worked in neurology for the past 12 years.  She has always had a passion and specialist interest in Motor Neurone Disease, so jumped at the opportunity of specialising in the field and working alongside the consultants at the Royal United Hospital in Bath, Dorothy House and all the community teams involved.  She is always keen to share her knowledge and passion for MND to ensure that a patient’s experience is the best it can be and to give clinicians the confidence in working with people living with MND.

Further information around our MND service can also be found on our website here Motor Neurone Disease (MND) – Dorothy House.

Dawn Beckett, MND Practitioner Royal United Hospital/Dorothy House Hospice, will be joined by other specialists from across the field of neurology.

The study day is in two parts.

• The morning will consist of experts in the fields of MND and PSP, including neuropsychologists. The focus in on understanding the illnesses and impact on patient and their families.
• The afternoon is made up of small group workshops that focuses on the more practical aspect, for example feeding tubes, communication aids, environmental controls and ventilation.

PSP – Overview of the condition

• Signs and Symptoms
• Pathway to diagnosis
• PSPA services and support

MND – Overview of the condition

• Signs and symptoms and pathways
• Pathway to diagnosis and care

Cognitive changes – presented by a Neuropsychologists

• What to expect
• How to assess
• How to support

In the afternoon there will be workshops on feeding tubes, communication aids, environmental controls and ventilation.

Any AHP, Registered Nurses or support staff who have an interest in MND and PSP.

“The day was great. Thank you. There was a lot of content, and all was very varied. I learnt a lot and feel more knowledgeable as a result. The presenters were all very clear and very personable.”

“Thank you to all the contributors. Especially the service users. I really appreciate people taking the time and energy to consider what and how they can share for the learning benefit of us all. The study day was really interesting and so relevant.”

“Wonderful speakers and really interesting content and information. It was especially useful and informative to hear from patient’s themselves.”

“Having the patients there to give their own experiences of MND and how they and their families are navigating through was really helpful. I will be able to put into practice the appropriate communication techniques that were talked about as everyone is individual in their journey.”

“I thought the day was so well thought through, planned and executed. Felt very welcoming and positive, despite the potentially emotive topic/s.”

“It was very moving to hear from the patients themselves, and reminded me just how lucky we are to be involved in their lives at this point and to be able to make a difference for them.”